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Predictors of seizure onset in Rett syndrome

Many girls and women with Rett syndrome experience seizures. We wanted to know if there were any factors that influenced the age when seizures first developed.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Publications

Publications from 2016 dating back to 1993 of AussieRett researchers, showing the research work into Rett syndrome and related disorders.

The Kids Research Institute Australia

At The Kids, our vision is simple - happy healthy kids. Our goal is to make a real difference in our community to benefit children and families everywhere. Our values underpin the way we work and make decisions: collaboration, courage, evidence, respect.

Research impact

Discover the impact of our achievements in the "real world".

Helping communities take charge of the early years

A program unfolding in four very diverse locations across Western Australia is working to give children aged 0–4 the best start in life.

A hop, skip and a jump to better health for kids

Not too long ago, if you had mentioned physical activity to educators at the Sonas Early Learning & Care centres run by Shelley Prendergast, they would automatically have reached for the trusty old obstacle course.

Researchers sound the alarm as vaping fad explodes

Research into the potential health impacts of vaping is starting to back up concerns that electronic cigarettes (e-cigarettes) are not as benign as many people think.

How listening to our kids could help Australia get a move on

The Kids Research Institute Australia researchers are urging governments to listen more to what kids need.

The day time stood still for little Manna

Patricia Ilchuk can still recall the day in August 2020 when her daughter Manna – then five weeks old – had her first seizure.